Help raise awareness and push for action on Topical Steroid Withdrawal

Despite Government recognition and thousands of patient reports, TSW remains widely misunderstood and under-recognised. There is an urgent need for better data, formal training for medical professionals, and more accountability in reporting adverse reactions to topical corticosteroids.

By writing to your local representatives, you can help bring national attention to this issue and encourage action from the appropriate health authorities.

If you’re able, please also ask friends, family, and loved ones to send a message too – each voice adds weight to the call for change.

Health is a devolved matter in the UK. Please choose your location below and follow the steps to contact the appropriate decision-makers:

England

Find your local MP using this link: Find your MP
Download the email template here: [Download here]
Copy and paste the template into an email to your MP, and replace the red text with your own details and experiences
Attach the two supporting template letters to your email, to make it easy for your MP to forward your concerns to the right people:
- Letter to Baroness Merron, Parliamentary Under-Secretary of State for Health and Social Care: [Download here]
- Letter to the Secretary of State for Health and Social Care: [Download here]
Use the subject line: Urgent Action Needed on Topical Steroid Withdrawal Syndrome (TSW)
Send your email

Wales

Find your local MS using this link: Find your MS
Download the email template here: [Download here]
Copy and paste the template into an email to your MP, and replace the red text with your own details and experiences
Attach the supporting template letter to your email, to make it easy for your MS to forward your concerns to the Cabinet Secretary for Health and Social Care: [Download here]
Use the subject line: Urgent Action Needed on Topical Steroid Withdrawal Syndrome (TSW)
Send your email

Scotland

Find your local MSP using this link: Find your MSP
Download the email template here: [Download here]
Copy and paste the template into an email to your MP, and replace the red text with your own details and experiences
Attach the supporting template letter to your email, to make it easy for your MSP to forward your concerns to the Cabinet Secretary for Health and Social Care: [Download here]
Use the subject line: Urgent Action Needed on Topical Steroid Withdrawal Syndrome (TSW)
Send your email

Northern Ireland

Find your local MLA using this link: Find your MLA
Download the email template here: [Download here]
Copy and paste the template into an email to your MP, and replace the red text with your own details and experiences
Attach the supporting template letter to your email, to make it easy for your MLA to forward your concerns to Northern Ireland’s Health Minister: [Download here]
Use the subject line: Urgent Action Needed on Topical Steroid Withdrawal Syndrome (TSW)
Send your email

Thank you for using your voice for the community and generations to come. If you have any questions, please email preventable.doc@gmail.com and we will get back to you within 3-5 business days.