November 11, 2020
Categories: Monthly Newsletter
Our website has finally gone live!
A huge thank you to everyone who has contributed to the site and helped us create something we were only dreaming of a year ago.
We have created this resource for you to share with new sufferers and for people who want to understand more about TSW.
If you want to contribute in any way, including writing a post for our blog, please contact us at hello@scratchthat.org.uk
An extra special thank you to Andy Jones, a fellow TSW warrior, who kindly contributed his time and talents to setting up and building this website for us. We literally could not have done it without him!
ITSAN have released an important TSW survey
Big news! ITSAN have released a huge TSW survey that’s been 6 months in the making. If you have eczema or TSW, or you care for a child who does, please help by filling it out.
“This survey looks at eczema treatments and documents what patients are experiencing. Our hope is that it will help inform medical and regulatory bodies to improve health outcomes for patients.”
Kelly Barta, ITSAN
Click the link to take the survey and please share with all of your eczema/TSW friends:
Community News
Photo montage by @louigi.skin (From top left to bottom right: @kyle.cumming1, @tsw_gerald_sg, @driftree, @tombilli, @lukejacobsma, @callum_tsw, @thewulfrunner, @russmcr, @thordrexel, @tsw_parkash, @bigguyjourney, @marktpaterson, @dereecejulius, @tsw.butch, @tsw_seandillnutt, @tsw_jr)
Trending Hashtag: #MenInTSW
Men often feel underrepresented in the TSW community. This is because the majority of TSW sufferers tend to be female. We think there are a number of reasons for this but at this point in time we don’t know exactly why.
When navigating the uncertain and terrifying journey that is TSW, it is so important to find others in the community that are just like you. @tombilli bravely shared his photos and story on Instagram, calling for other men to do the same:
“TSW does not discriminate race or gender. We asked the men of TSW to share their image. I know too well the pain these men have suffered. In a world where men are told to be strong, be a man, control your emotions and don’t show weakness. Well I believe there is nothing stronger than a man admitting he has struggled but is still in the fight and will do whatever it takes to get to where he needs to be. I’ve had the pleasure of speaking to the majority of these men and they are without a doubt the strongest men I know so I praise you all.” @tombilli
Men often feel underrepresented in the TSW community. This is because the majority of TSW sufferers tend to be female. We think there are a number of reasons for this but at this point in time we don’t know exactly why.
When navigating the uncertain and terrifying journey that is TSW, it is so important to find others in the community that are just like you. @tombilli bravely shared his photos and story on Instagram, calling for other men to do the same:
“TSW does not discriminate race or gender. We asked the men of TSW to share their image. I know too well the pain these men have suffered. In a world where men are told to be strong, be a man, control your emotions and don’t show weakness. Well I believe there is nothing stronger than a man admitting he has struggled but is still in the fight and will do whatever it takes to get to where he needs to be. I’ve had the pleasure of speaking to the majority of these men and they are without a doubt the strongest men I know so I praise you all.” @tombilli
Resources
Printable: TSW ‘Condition Card’
Having trouble explaining TSW to your loved ones? We have designed a ‘condition card’ that explains TSW in the most simple way possible.
You can share it on your social media profile (or even print it out and carry it around!) to help others understand this condition better.
We even had it translated into German for the TSW Deutschland community!
Love and healing thoughts from Holly + the Scratch That team
“You are here for a reason. You are incredible for getting through tough times – be proud. You have power in your ability to choose how you react. You are not defined by others, or your past – you get to do that. You are going to get through this and come out the other side.
MHRA Recognises TSW in Drug Safety Update
"Topical steroid withdrawal reactions have been reported in some long-term users of topical corticosteroids after they stop use."
Summer 2021
It’s hard to know whether spring actually ever arrived, or if we went straight from winter to summer, but a change in season can bring about changes in your skin. Here are some things to think about and some tips to manage some potential new concerns as the weather fluctuates.
November 2020
A huge thank you to everyone who has contributed to the site and helped us create something we were only dreaming of a year ago. We have created this resource for you to share with new sufferers and for people who want to understand more about TSW.
October 2020
This is our first ever newsletter! October is Eczema Awareness Month. The Topical Steroid Withdrawal community is closely linked to the eczema community and we a proud supporters of the year’s awareness campaign.
